Thursday, June 27, 2019

Gabe

With each of our losses, there has been some unknown component.  Either we were too early for testing, we denied testing, or everything tested normal.  There have been lots of guesses as to what is happening, but nothing concrete.  And for me, that's given me extensive amounts of guilt.  Maybe I did too much.  Maybe I ate the wrong thing.  Maybe I lifted the kids too often.  Maybe I didn't rest enough.  Maybe I simply WASN'T enough.  Ten years worth of guilt and questions, never with an answer.  For our sweet little miracle, I needed that answer.  And since, for once, my body didn't recognize what had already happened, we were able to get a few answers.

First, we were having a boy.  Of course I already knew this, I wasn't nearly sick enough for this little one to be a girl.  I was still functional (barely) so I told Andrew the week prior in 100% confidence that this baby was a boy.  Glad to know my mama instincts are spot on with at least this little detail.  Since our last transfer, we've talked extensively about our girl and boy names.  We've had a top for each gender, a plan.  Of course, in my mind, it was a twin set that I was naming.   But in reality, that didn't happen, and we will never get to call out or sweet boy's name in our home.  But it felt wrong to save the name for a potential future adoption.  I would never be able use the name again, knowing full well that had this child lived, it would have been his.  And so, we have given this child, this little boy, the name Gabriel Preston Savant, aka "Gabe".

But we also learned that Gabe would have been a very sick little boy.  He had trisomy 13.  I had never heard of trisomy 13 (we've heard of 21, 18, even 16, but never 13).  And this is because, babies with this diagnosis don't survive.  They don't live.  Had Gabe been born, he would have been in significant physical pain.  He would have spent his little lifetime either having multiple procedures or withdrawing treatment to allow the inevitable to take place.  And that would have broken me for sure.  I already know there is little worse than having your child in pain, that watching helplessly as they fight.  We lived through that for 3 months with Dean and Warren - but there was a different goal in sight for them.  For Gabe, no matter how the pregnancy turned out, we would have said goodbye to him in his first year of life.

But today, today he is whole.  Today he is healed.  Today he is complete.  That doesn't take away the pain I have.  That doesn't take away the questions of why he would have that in the first place, of why we were chosen for this.  But I can rest in knowing that one day I WILL know him without the pain between us.   And that helps a tiny bit.

Monday, June 10, 2019

Happy 2nd Birthday Lucas!

Two years and 1 day ago, our world crumbled.  I fell asleep to a kicking baby and woke knowing something was wrong.  And on June 9, a sweet nurse at the hospital sobbed alongside us as she gave us the news.  Our baby boy was gone.  We just struggle to get through June 9 each year.  But on June 10, we can celebrate.  Today, my sweet Lucas turns TWO!

Lucas was born in the wee hours of the early morning.  Unlike Hannah, Dean, and Warren, there was no team of doctors there.  No NICU staff standing by.  No big lights and excited voices.  With Lucas, all was still and silent.  A single doctor, a single nurse, and his mommy and daddy.  There were tears all around.  But, there was also joy.  That's such a hard thing to explain, but I so much loved the little time we had with him.  I love that I got the opportunity to know him a little bit, to study his little face - his cleft chin and pudgy cheeks and unibrow.  I love that I was able to read him a story, to sing him a lullaby, to hold him.  I have about 8 hours of memories with my sweet Lucas to last me a lifetime.


Happy 2nd birthday Lucas!  This year we are in the mountains for your birthday.  I'm sitting out on the balcony while Dean and Warren fight inside.  Daddy and Hannah are looking at pictures of us all together.  It's like any other day, except it isn't.  Because today is YOUR birthday!  We had big plans for today - a hike in the morning, a picnic in our favorite park, cupcakes and cards for your birthday party.  But the weather isn't cooperating with us and it's cold and wet today.  Which means, a dinosaur museum (which at 2, you probably wouldn't have enjoyed.  But by 5 you would love)  Don't worry - we are still planning on those cupcakes!  Mommy even made them gluten free so I can enjoy too!  But mostly, today is a day when we get to think about you a little more, get to talk about you more freely, get to remind your brothers and sister that not every day is about them.  I have missed you so very much over these past 2 years.  So much.  As Dean says, I so wish you were able to come live with us.  But ultimately, I know you are cared for and safe and loved now.  And so I'm resting in that on this dreary mountain day.  Knowing you are celebrating yourself with Reagan and Noah, with your 12 brothers and sisters in heaven.  What a party!  But don't grow up too fast, k??  Save something for Mommy to teach you. I love you fiercely my boy, always and forever.